Phumeza Tisile knows the struggles of being infected with XDR-TB and wants to make sure no other suffers from it. (Image: Doctors Without Borders)Proper diagnosis of disease is critical as this gives the framework for the treatment and medication needed. A wrong diagnosis can be fatal; thankfully for Phumeza Tisile, it was not.Tisile was only 19 years old in 2010 when she was diagnosed with tuberculosis (TB). She was, however, misdiagnosed: in reality, she was ill with extensively drug-resistant TB (XDR-TB), the deadliest form of the disease.Sufferers of XDR-TB go through an excruciating two-year journey during which time they must swallow up to 20 pills a day. They must also receive a painful injection every day for the first eight months, making it hard to sit or even lie down. For many, the treatment makes them feel sicker than the disease itself, as side effects cause nausea, body aches and rashes.Because of her misdiagnosis, Tisile reacted badly to the drugs she was prescribed. She lost her hearing and had to have surgery on her lungs.Her lifeline came in the form of Jennifer Hughes, a TB doctor from Doctors Without Borders, at the Cape Town clinic where she was being treated. Following their chance encounter, Hughes drew up an individualised treatment regimen for the young woman.Linezolid was part of her treatment. Linezolid was not developed to treat TB specifically; rather it is an antibiotic used for the treatment of serious infections caused by Gram-positive bacteria that are resistant to other antibiotics. The main uses are to fight infections of the skin and pneumonia, and because of patent issues it is very expensive.Tisile was cured in 2013, but she began her fight against disease by writing a manifesto – with the support of Hughes – to get support from doctors and patients in overcoming XDR-TB.THE MANIFESTOTest Me Treat Me, Tisile’s manifesto, calls for three things in particular:Everyone must have access to testing and treatment for XDR-TB;There needs to be better treatment and higher cure rates; and,The international community must fund the fight against XDR-TB.Tisile told Redbull Amaphiko, a collaborative platform for social entrepreneurs who want to bring change to the world: “The reason we wrote the manifesto was to let the world health leaders know that XDR-TB was an emergency.”After presenting it to the World Health Assembly in Geneva in May 2014, she described it as a “20-year strategy”. “Besides handing over the manifesto, I did interviews with health journalists from Germany and wrote a blog on The Guardian. There were workshops organised by Doctors Without Borders where I spoke about my experience with TB,” said Tisile of her experience in Switzerland.CHEAPER DRUGS THE SOLUTIONDuring her three years of treatment, Tisile was part of a privileged 20 out of 300 suffering from XDR-TB to be treated with Linezolid.“It’s because of the patent laws,” she explained. “The drug is too expensive and people who need it the most can’t get it. I’ve met people who I called friends who have now died.”Linezolid is sold at R700 a tablet, but Tisile says there is a cheaper version from India that costs R20 a tablet.PREACHING THE CURETisile, who is now 24 years old, lost her hearing as a result of the misdiagnosis, but since then has had two cochlear implants and has regained her hearing. Her journey to recovery has given her the opportunity to speak about her story to medical students and ordinary people as part of TB Proof.TB Proof is a grassroots health care and TB survivor initiative founded in 2012 by South African Health Care Workers and Students after multiple personal experiences with occupational tuberculosis, particularly multidrug-resistant TB.Since working with TB Proof, Tisile said, she had learnt that medical students, professional nurses and doctors did not wear TB masks when attending to patients because they feared their colleagues would see them as weak.
John Lloyd Cruz a dashing guest at Vhong Navarro’s wedding Slow and steady hope for near-extinct Bangladesh tortoises LATEST STORIES Read Next Globe Business launches leading cloud-enabled and hardware-agnostic conferencing platform in PH 2 ‘newbie’ drug pushers fall in Lucena sting View comments — Donald J. Trump (@realDonaldTrump) February 7, 2018The United States had won four medals as of Monday, including gold in men’s and ladies’ slopestyle.White House press secretary Sarah Huckabee Sanders on Monday congratulated the U.S. Olympic team on a “great start.”“We especially look forward to snowboarders Jamie Anderson and Red Gerard bringing their gold medals back home with them very soon,” she said.Vice President Mike Pence returned to Washington late Saturday after leading the U.S. delegation to Friday’s opening ceremony. Trump’s daughter, Ivanka Trump, who serves in the White House as an unpaid adviser to her father, will lead a delegation to the closing ceremony.ADVERTISEMENT NEXT BLOCK ASIA 2.0 introduces GURUS AWARDS to recognize and reward industry influencers Missing from the series? Any mention of Team USA or words of encouragement for the athletes competing in the games that opened Friday in Pyeongchang, South Korea.Trump did send a pair of tweets last week complimenting the host country for the games.FEATURED STORIESSPORTSWATCH: Drones light up sky in final leg of SEA Games torch runSPORTSLillard, Anthony lead Blazers over ThunderSPORTSMalditas save PH from shutout“Best wishes to the Republic of Korea on hosting the @Olympics! What a wonderful opportunity to show everyone that you are a truly GREAT NATION!” he tweeted last Wednesday, two days before the opening ceremony. He followed up with: “Congratulations to the Republic of Korea on what will be a MAGNIFICENT Winter Olympics! What the South Korean people have built is truly an inspiration!”Congratulations to the Republic of Korea on what will be a MAGNIFICENT Winter Olympics! What the South Korean people have built is truly an inspiration! pic.twitter.com/giN2B1h6Ph Brace for potentially devastating typhoon approaching PH – NDRRMC AFP official booed out of forum Typhoon Kammuri accelerates, gains strength en route to PH President Donald Trump is greeted by Secretary of Transportation Elaine Chao, left, and Nebraska Gov. Pete Ricketts, right, as he arrives for an infrastructure meeting in the State Dining Room of the White House in Washington, Monday, Feb. 12, 2018. (AP Photo/Carolyn Kaster)WASHINGTON — President Donald Trump has a tweet for just about everything, but he’s got nothing so far for Team USA a few days into the 2018 Olympic Games.Since the competition began on Friday, Trump has tweeted about the massive budget deal he signed into law, his desire to have more Republican legislators in Congress and offered condolences for two Ohio police officers who were killed in the line of duty. He tweeted about jobless claims dropping, his decision to block release of a Democratic memo on the Russia investigation and the downfall of a top aide accused of domestic abuse.ADVERTISEMENT Trump’s silence on the Pyeongchang Games mirrors his relative lack of comment during the 2016 Summer Olympics in Rio de Janeiro, Brazil.He sent one tweet that August. “Good luck #TeamUSA #OpeningCeremony #Rio2016,” Trump wrote as a caption to a photo of himself, with both thumbs up, standing in front of an American flag. Superimposed on the photo was the phrase “Big League Good Luck Team USA.”And that was it. North Korea leader impressed with South’s delegation welcome MOST READ Trump talks impeachment while meeting NCAA athletes PLAY LIST 01:07Trump talks impeachment while meeting NCAA athletes02:11Trump awards medals to Jon Voight, Alison Krauss00:50Trending Articles01:29Police teams find crossbows, bows in HK university01:35Panelo suggests discounted SEA Games tickets for students02:49Robredo: True leaders perform well despite having ‘uninspiring’ boss02:42PH underwater hockey team aims to make waves in SEA Games01:44Philippines marks anniversary of massacre with calls for justice01:19Fire erupts in Barangay Tatalon in Quezon City Don’t miss out on the latest news and information.